Currently, both girls are off phototherapy (although they could go back on at some point), increasing feeds and calories (breast milk and added calories only now, no formula or IV), practicing maintaining their own body temp by being swaddled in the isolettes with minimal heat (working down to room air), and off any sort of help with breathing. Both girls have had a few "spells" of apnea, but not enough to put them back on CPAP or a nasal canula. They have lost weight since birth, but that is to be expected, and we're hoping they will start gaining back the weight soon.
Rose has been examined by the plastic surgeon's nurse, who said that the cleft is limited to the gum and lip and will likely be completely repaired with just two surgeries, which will be done well before she is a year old (more like 6 months or so). Some revisions may be likely in the future, but that's a wait-and-see for now.
We've both gotten to hold each baby a few times, and are completely taken with their tiny little selves, as well as the cute squeaks they make when they get the hiccups. Pretty adorable, if we do say so ourselves!
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I love this blog! Great news about the girls and their progression. Can't wait to meet them. And congrats on going home, J. You must be thrilled to be in your own space again. Love to you all.
ReplyDeleteGirls are so beautiful!!! Love the kangaroo care so much--little warm bodies all snuggled...ahhhh
ReplyDeleteLove,
Corey
Love the pictures and the updates. So glad Mom and girls are doing well. They are beautiful!
ReplyDeleteSending hugs to all,
Sue Atwood
Oh J - They are AMAZING! I can't stand how beautiful they are! And little rock stars to boot! Breathing and eating at the same time! Show offs I tell you! Show offs!! and how great the the cleft is only gum and lip... all such good news I am crying I am so happy for you! Keep up the good work!!
ReplyDeleteps you are a pretty darn cute family of kangaroos too!!!
Re squeaks: I don't remember hiccups specifically, but I remember that S and I used to listen to the babies squeaking when they were in a bassinet at the foot of our bed at night; they sounded just like baby birds in a nest.
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